Sunday, April 21, 2024
HomeWorld NewsCanada newsA living wake: Why this Charlottetown man chose to talk about his...

A living wake: Why this Charlottetown man chose to talk about his medically assisted death

In the weeks leading up to his death, Craig Mackie’s breathing mirrored the short, sharp strokes he was making on his laptop keyboard, documenting his final days. 

“At this point in my fading life, I’m struggling to breathe every day,” Mackie said from his kitchen table in Charlottetown, in early October 2022. 

A rapid decline due to pulmonary fibrosis had left Mackie, 71, endlessly gasping for air, requiring near-constant support on oxygen. For months, he used his remaining energy to write at length about his health, drafting dispatches from the confines of his home and sometimes a hospital bed. Then he shared these thoughts publicly, on a blog and through social media. 

“The feedback I’ve been getting is that the way I write is — it seems to speak to a lot of people. So I’d like to keep that going,” said Mackie. 

The writing continued as he looked into the possibility of a medically assisted death, determined not to die the way his mother had. She too had pulmonary fibrosis. 

“She literally suffocated to death,” said Mackie. “And I thought, if I ever have the choice, that’s not what’s going to happen to me.”

Atlantic Voice26:10The Living Wake

Throughout his life, Craig Mackie used his voice to help others. And he decided to do the same as he faced death, and his choice of medical assistance in dying. A documentary by Jessica Doria-Brown.

Starting conversations

Medical assistance in dying, or MAID, has been legal in Canada since 2016.

Mackie’s application was approved in September, and having that option offered him comfort. Throughout his life, he had taken on leadership roles — including at CBC Prince Edward Island and as the former head of Immigrant and Refugee Services Association P.E.I — and sharing his thoughts online about MAID became a way to continue using his voice and connecting with others. 

“I wanted… to have people understand that in Canada we have this choice and it’s very special, that it could easily be taken away,” said Mackie. 

“As we know from [Roe] v Wade in the States, these things can be legislated and they can be taken away. So I want people to understand that it’s — it’s a compassionate, human choice.”

MAID remains contentious in Canada. Proposed legislation to extend access to people with severe mental illness has come under fire, with changes now delayed until 2024 as the federal government, provincial and territorial partners, and medical communities assess the best way to move forward. 

On P.E.I., only a handful of doctors and nurse practitioners work in this area of health care. Dr. Megan Miller, a family physician with extra training and experience in palliative care, said the focus is on helping patients who want to learn more about MAID understand their options. 

“It’s a very rigorous, extremely careful process that, as practitioners, we take extremely seriously. And we do that work in a very, careful and considerate way,” said Miller. 

“There is never any pressure for patients. They can withdraw their request or change their mind at any time and we would all 100-per-cent support those decisions.”

We are born. We live. We die. It’s what you do with the middle part of that sandwich that matters to me.— Craig Mackie

In P.E.I., there were 111 MAID deaths between 2016 and 2021, with the numbers growing each year. Miller describes it as a complex and immensely personal choice, with more people applying for it than actually going through with it.

But either way, she says, talking more openly about death — and MAID — helps us all. 

“I think it can be an isolating experience for some patients and people experiencing it,” said Miller.

“I think there are a lot of people in the public who don’t know how to support those patients or talk to them because of the awkwardness around it, and we are all better off if we can share some vulnerability and share the uncertainty and have conversations about it.”

A man in shorts and a sweater leans against a wooden post, surrounded by trees.
Craig Mackie was active throughout his life, enjoying hiking, curling and tai-chi. Pulmonary fibrosis brought an end to all these activities. (Craig Mackie/Facebook)

Opening people’s eyes 

By early October, Mackie was ready to set a date for MAID. Just as he had been open about his medical journey so far, he continued to write about his final choice.

“I’m not afraid of death. It is a natural part of the cycle of life. We are born. We live. We die. It’s what you do with the middle part of that sandwich that matters to me,” he posted on Oct. 21.

For Mackie’s friends, following his regular posts became a way to stay connected in his final weeks, and add their own comments, photos and music. His Facebook page became a daily destination for those wanting to read his latest account and see what others had shared. 

“I think by Craig being so open about it, it’s opened a lot of people’s eyes to the process,” said Peter Murdoch, a friend and former competitive curling teammate of Mackie’s. 

“By Craig doing this, I think it’s going to make the conversation, at least among his circle, a heck of a lot easier for people.”

Mackie’s partner Mary Phalen often shared the posts, hoping to keep friends and family near and far updated on his condition. 

“I’m glad that people are getting comfort or maybe starting conversations in other households. I think that’s a good thing,” she said. 

“And that’s been very therapeutic for him, I can see that. I also see how much he’s suffering. So, as hard as it is to say goodbye, it’s hard to see someone suffering. You know, there are worse things than death.”

A man and a woman dressed in winter coats and toques smile for the camera in front of a backdrop of sand dunes.
Craig Mackie and his partner Mary Phalen. Phalen says she hopes the social media posts helped start conversations around death in other households. (Craig Mackie/Facebook)

For Mackie, having the chance to share his experiences and insights — and connect (and re-connect) with friends, loved ones, and acquaintances near and far — filled those final days with unexpected warmth, laughter, and joy. 

“It’s been both a humbling experience, but an uplifting one as well, to have met and engaged with all of these amazing people” said Mackie.

“Somebody described this whole process as kind of like a living wake. And I went: ‘Yeah, that’s kind of what it’s been like.’ It’s just…reconnecting and remembering has been just an overwhelmingly positive experience.”

‘A natural end’

In the days leading up to his death, there were fewer posts. His final thought was short, reading simply: “Death is a natural end to life. Ending suffering is a compassionate end of life choice.”

That post came on his final day: Nov. 2, 2022.

In the time since, his Facebook page remains a destination for some, to remember him or say “I miss you.” 

“I think how you face death should be at least as important as how you face life,” said Todd MacEwan, Mackie’s friend and former colleague.

“It is going to happen to us and, you know, seeing the bravery and courage that Craig demonstrated during his illness is something that I think has touched a lot of people.”

More Related Articles

LEAVE A REPLY

Please enter your comment!
Please enter your name here
Captcha verification failed!
CAPTCHA user score failed. Please contact us!

5 Days Trending

We use cookies to ensure that we give you the best experience on our website.